Monthly Archives: October 2013

I LOVE Being Wrong!

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As I wrote in my last entry, I was about to begin the process of assimilating myself into an entirely new facility to obtain the pain management care I need to get by, and I was mighty apprehensive. We see frequent reports of pain patients being dropped by their doctors, being cut off from the ability to obtain the drugs they need, or even assaulted, kidnapped and caged by the Law Enforcement arm of the State.

I was forced to make the transition because the DEA had descended upon my primary care physician and the pain management specialist he retains, threatening to pull everyones’ professional certificates for the heinous non-crime of prescribing the meds their patients need, of actually caring for them as their occupations require. After seeing many ugly stories on the War on Pain Patients, needless to say I wasn’t expecting a pleasant time in dealing with this new facility.

How I enjoyed finding my apprehension was nothing but vaporous fears!

Everything went smoothly, from the desk person who took my paperwork, to the intake nurse, to the first meeting with my new pain management specialist and consulting physician. I wasn’t treated like mild on a Petri dish, nor was I interrogated about suicidal tendencies or whether I was a gun owner, unlike a bunch of other medical people I’ve encountered. They actually listened to my history, and surprised me when they heard about the monstrous neurologist who diagnosed me quickly but then turned on me and tried to make a compliant research subject out of me…including attempted blackmail…with their knowing acceptance of his behavior as I related to them. Evidently criminal doctors are more commonplace than I’d expected!

As to continuing the pain management regimen my previous pain management specialist and I had worked up over the past few years, my new advisors understood my aversion to altering it or worse, substituting any of Big Pharma’s substitutes that usually have a long list of unpleasant side effects associated with them.

They even expressed their willingness to accomodate me, once I’ve become fully involved with the facility over a few months’ time, in only requiring me to appear every two months to refill my prescriptions. For a healthy person it’d be no big deal, but until this fundraiser’s completed, my Honda modified and my freedom of movement restored, remember I have to use a disabled taxi to get places. It isn’t overpriced at all, but it ain’t cheap.

All things considered, this visit was a win in every area given my limitations. With all of the verifiable troubles heaped on the disabled I don’t feel silly about preparing myself for a potentially unpleasant ordeal, but I sure was glad to find my fears unfounded in this case. Sorry it took a couple of days to make my report, but the stress and effort of this outing knocked me on my butt. I slept for nearly 12 hours Thursday night, and it took another day just to get back to my ‘normal’ energy level and get to the recounting of the adventure.

This has been useful in its way though, one more example of my need for mobility and independence that only a suitable wheelchair accessible vehicle will bring back to my life, and I do hope that folks will consider how easily this can be accomplished with enough people making small donations to my cause. Don’t forget, anyone contributing $4 or more will receive the four song thank you package as an added incentive…so please drop whatever you can spare in the kitty. I can’t wait for this to be done so I can quit being a public pest soliciting donations and get down to the business of promoting liberty out in my local world or further!

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Attack of the Drug Warriors

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And people marvel at how cynical I’ve become.

I had a pretty good arrangement established with my physician’s office, he employs a specially trained pain management specialist and over the past couple of years she’s worked with me to tweak my intake of pain drugs to be the minimum possible while effectively damping the neuropathic pain caused by MS to a low enough level that I can function. Sure, I’m nowhere near as productive as a healthy person, and I’m never out of pain entirely, but with the small amount of drugs I ingest daily the pain level isn’t like a buzzing fly in my ear that keeps my mind distracted from whatever business at hand I’m trying to accomplish.

As I discussed in my last post, I now have to go to a dedicated pain management facility…and tomorrow’s the day. The knuckleheads at my doc’s office inadvertently bought me a few extra weeks’ reprieve by not updating their records and I went on a wild goose chase last time since the office I’d picked was no longer there and had moved some distance away. There are…or were…only two such facilities reasonably close to me so the second one’s the only choice left.

Tomorrow I’ll be making my first trip to see them, and I confess I’m not at all sanguine about the outcome. Recently this one, the ‘Center for Spine, Joint, and Neuromuscular Rehabilitation’ sent me a sheaf of forms they require new patients to fill out. It was about fifteen pages, most of which are loaded with spaces for information. Like even my neurologist’s office’ forms, they have to be manually filled out, a minor annoyance for most people, but remember that with my dominant left hand’s function severely limited by MS, I simply can’t do hand writing. I had to enlist my mom to assist, but I’m pretty appalled that in this day and age these forms can’t be digitized so they could be completed with a keyboard for folks like me. The cheapest junk PC with a Word or .pdf editor couldd handle the job…but so far these ‘experts’ haven’t got the memo.

Worse, the language is mighty authoritarian in nature, filled with all sorts of privacy invasions and penalties for not following each edict to the letter. Like the Social (IN) Security disability process I endured, again I’m being treated like a criminal. There’s even a provision for them to count my pain pills if they get the urge, to make sure I’m not gobbling them like candy. Un-freakin-believable.

With an adverse tone and demeanor already established, I have a feeling they’re going to cut my pain meds off, since the Holy Drug Warriors have adopted a punishment ethic against chronic pain patients. I talked about some of the ugly stories in the article I wrote last year for the American Daily Herald, now I get to see the process firsthand.

The irony is I wouldn’t need the pain meds I take at anywhere near the level they’re now at if I were able to get out in the world and busy myself with the many things I want to do.

Beside the obvious fact that I’m not dumb or reckless enough to drive under the influence of pain drugs, while I may never be out of pain, I’ve seen in the infrequent times when I’m occupied doing something real, the activity submerges that pain to a far less significant level and it can be ignored. Sounds subjective, but there’s all the difference between being stuck in one place where the pain can demand my attention and being immersed in a dynamic activity that banishes it into near-insignificance.

So you can see that the need for recovering my mobility is greater than ever. I’ll keep the writing and broadcasting up even if I get stuck with an even higher pain level and will not knuckle under to it, but I know I could do so much more with my liberty of movement restored.

PLEASE help me do this, we’ve raised just under half of the needed amount but there’s still a ways to go and I implore the world out there for a hand in achieving this, it’s more urgent than ever!

You haven’t seen even a fraction yet of what I’ll be able to do in promoting liberty, the nonagression principle and sound currency once I get back to the Land of the Living!

I’ll keep everyone updated as to how all this turns out…wish me luck, and count on a full report soon.

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